We were discharged this morning at 10:30 am. We are finally back at home again! Adam is recovering well from his surgery. We are still waiting for a big poopy diaper but he’s passed a lot of gas already, which is a good sign that his bowels are moving 👍
The nutritionist came by last night and was concerned that Adam is not gaining adequate weight. He’s a cancer patient who vomits when he’s not feeling well and neutropenic, but he eats well when his counts are up again. So what’s the solution to get a baby on chemo treatment to gain weight? I’m not sure. First, they are recommending that we fortify his breastmilk with a small amount of formula. If anyone has any good suggestions for formula supplementation let me know. They’ve sent us home with Enfamil infant formula. We’ll see how this goes. He seems to be a really picky eater so my guess is that he’ll notice the change in taste of his breastmilk and refuse to drink, but let’s hope I’m wrong.
For now, we are enjoying just being back at home for a couple days before going back to the hospital for our next visit. We thought the surgery was going to set him back from his crawling for a few weeks but he’s right back at it already! We are over the moon.
Today, Adam is enjoying spending some quality time with Dada on his birthday. (Dad’s birthday, that is ☺) And the best birthday gift was being discharged from the hospital!
Thank you to everyone who has been praying for Adam’s surgery and recovery. Because of your prayers, Adam has been doing so well. If you can, please also say a prayer for our friends, the Hammersleys, who we recently met at the hospital a few weeks ago. Their daughter Hazel, (age 7) had been battling neuroblastoma for 5 years and lost her battle with cancer yesterday morning. Even though we don’t know them well, this hits so close to home. As part of the neuroblastoma family, we are heart broken, and our heart goes out to them. Please keep them in your thoughts and prayers. 💛