Month: August 2018

Well, I think I already gave away the good news in the subject line. We didn’t want to keep you holding your breath, and we just couldn’t wait to share this news with you all!

As we mentioned in the previous post, Adam had a series of scans and procedures over the past week, including a bone marrow biopsy, an MIBG scan, and an MRI of his entire body.

We had a follow up appointment with his oncologist this afternoon to review the results, and all scans showed no more signs of cancer! So Adam is now officially CANCER FREE!!!!!! Words cannot express how we feel. This is the best news we could’ve ever received!! Tears of joy came streaming down my face as I heard this news. I thought about what our life would be like now, and how Adam can finally begin to have a normal childhood. We thank and praise the Lord for this good report.

It was exactly 7 months ago that Adam was diagnosed with Neuroblastoma. Next Friday, he will have some labwork done for some final checks before scheduling his permanent IV removal (central line). After that, he will have scans and follow up appointments  every 3 months for the next year or so, and ongoing follow-up likely for the rest of his life.

There’s so much more to say and share with you all. So more to come later. For now, we just wanted to share this very exciting news with you all. Thank you for all your prayers and support these past 7 months. We could not have made it through without you. We love you all.

(hopefully the video works this time…)

Hi Everyone,

Adam will be undergoing a procedure tomorrow to take a sample of his bone marrow, followed by a body scan on Friday. Both of these will require sedation. After the bone marrow procedure, he’ll get an injection needed for Friday’s scan, so it will be a long day involving no food prior to procedure. His appetite is strong, so he won’t be happy.

Next week he will have an MRI done, and hopefully these three procedures will give us a clear picture of whether or not there is any cancer left in his body.

Thank you all for your continued prayer.

 

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It’s been over 48 hours since Adam was admitted to the ER. The doctors have now been able to confirm that the blood cultures that they drew on Saturday are negative and therefore show no signs of infection in his blood. Thank you, Lord! 🙏

Adam was discharged from the hospital TODAY, and he received platelets just before discharge.

Thank you all so much for praying for us these last few days especially. Even though going to the ER for a fever is almost “routine” for his situation, the thought of it indicating something worse is still really scary. And of course staying overnight in the hospital is never fun (for us and Adam!)

Thank you for all the thoughtful comments below, texts, phone calls, and visitations. We are cherished by all the love and care for us. ♥️ We’re almost at the finish line! Praying for no more fevers and clean scans.

This morning at around 11:00 am, Adam spiked a fever of 101.5F. So we immediately brought him into the ER to check. They drew blood cultures to check if there is any infection in his central line. Then they administered Tylenol and antibiotics immediately after.

Since Adam is neutropenic (immunity almost zero) and has a fever, he has been admitted into the hospital. We will be here until the blood cultures come back negative for infection, his fever goes away and his immunity starts increasing.

Just when we thought we were “in the clear” since he just finished his last round of chemo (as far as we know now). Sigh.

Please keep us in your prayers. Adam’s fever went away shortly after receiving Tylenol this afternoon, but just tonight around 9:30 pm it seemed his temperature was on the rise again.

Just realized that the video I uploaded in the previous post had an error. So I’m posting it again… (for those who care to watch a 10 second clip of Adam taking 3 steps, ha). Enjoy!

We have been anxiously waiting to start Adam’s last round of chemo (cycle 8). It’s taken him a lot longer to recover this time, so he hasn’t been ready to start therapy yet. He was supposed to start chemo 2 weeks ago but wasn’t fully recovered from the last cycle (cell counts still too low). So we waited another week, but he was still not ready. We just got confirmation from the doctor that he will start his last round of chemo TODAY. Even though his counts are low, they are acceptable to start chemo. Today’s chemo is only a 1-day cycle, but it will be several hours.

Over the next 2 months Adam will have a series of scans and tests to confirm the cancer is completely gone, and determine whether more chemo or a biopsy is needed.

Adam has been eating well and enjoys eating solid foods now! He’s now 18.5 lbs and 13 months old. He has also taken his first few steps as of yesterday, which is so exciting for us! Below is a short video.

We wouldn’t be able to get through all this without your continued prayers and support. A million thanks 🙏.