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Day 9 – Chinese New Year

Posted on February 16, 2018, 11:03 PMFebruary 18, 2018, 8:37 AM by Hannah

Adam is starting to use his feet a lot more again. Lately he enjoys wrapping his feet around dad’s face or pressing his toes against dad’s face ?

 

We’ve started sitting him up more, which he seems to really enjoy. We think he’s getting tired of lying in a bed all day (who wouldn’t!) He still can’t sit up on his own yet but that’s probably because his belly is still pretty big. A physical therapist and occupational therapist came by to see him this week and gave us some tips on how to keep him moving and make sure he’s growing and developing normally. We hope to get him out of the crib and start playing with him on a play mat soon!

Adam also enjoyed his first Chinese New Year and received his first hong bao (red envelope) today! Thank you gong gong and po po. Grandma and grandpa got to spend some quality time with Adam today, and Adam wishes everyone a Happy Chinese New Year!

And Mom and Dad enjoyed a delicious Chinese New Year lunch today, from guess where? ??

Speaking of eating, today Adam vomited AGAIN ? So, we reduced his feeds down to a minimum and he is also receiving anti-nausea medication. Nausea is a common side effect of chemo so we think that’s what may be causing his vomiting. We are still bottle feeding him on demand, in addition to the tube feeding, which we are hoping he’ll do more of so that we can eventually remove the NG tube.

Sorry, I know we’ve been talking about vomiting A LOT. But hopefully that’ll stop soon and then I won’t have to talk about it anymore 🙂

The doctors are also wanting to slowly wean him off of his pain medication. We’ve been reducing the dosage a teeny tiny bit every day and he’s been doing great so far. He has been getting a continuous dose of pain meds thru his IV line, but he needs to be completely weaned off of this before we can go home.

Hopefully going home is in the near future for us, but as of right now still no sign of discharge from the docs. More updates later.

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Day 8 – Adam’s Eating
Some photos

11 thoughts on “Day 9 – Chinese New Year”

  1. Loretta + Glen Wiebe says:
    February 18, 2018, 3:40 PM at 3:40 pm

    We are praying every day! Thank you for taking the time to share and post.

    Reply
  2. Nancy Mannix says:
    February 17, 2018, 5:05 PM at 5:05 pm

    chúc mừng năm mới (happy new year in Vietnamese)!
    I bet Adam’s going to love Din Tai Fung dumplings pretty
    soon. Thanks for sharing his wonderful smiles.
    Delighted and grateful for the good progress so far.
    God is good – He’s got this! Love to all…N+J

    Reply
  3. Deborah Ann Dewey says:
    February 17, 2018, 4:41 PM at 4:41 pm

    Thank you for such detailed, unabashedly positive AND REAL postings and photos. A privilege to be allowed these glimpses into the hopes and fears and intimacies of your journey. Love you 3 hugely and more widely than ever as I see these steps you take and the generous way you express it all.
    With you daily and hourly and sending big love to you and the hospital staff and docs through this formidable challenge.

    Reply
  4. Michelle Leung says:
    February 17, 2018, 12:41 PM at 12:41 pm

    Happy Lunar New Year ????????? to all of you ?!! I’m really happy to see that Adam is using his feet more, and is becoming active again! These are very encouraging signs!! It’s very touching to see that he was surrounded by so much love ❤️ on Valentine’s Day ?, during this Lunar New Year ???, and each and every day ??! I ❤️ your blog about how the nurses were fighting to be with him on Valentine’s Day ? ?!! What a charmer ? ??!! I will continue to pray ?? ❤️ for all of you, and also pray that Adam’s eating improves! **Sending Lots of Hugs and Love ❤️ **

    Reply
  5. leang says:
    February 17, 2018, 10:19 AM at 10:19 am

    happy cny! adam is looking good! and hopefully the vomiting will stop soon so that he can get all the nutrition he needs and kick the cancer!

    Reply
  6. Sandra says:
    February 17, 2018, 9:52 AM at 9:52 am

    Wow! He looks so happy! Thank you for the updates. We hope and pray that he continues to improve day by day. <3

    Reply
  7. Julie says:
    February 17, 2018, 8:03 AM at 8:03 am

    Adam is an inspiration! That smile makes my day.

    Reply
  8. Hillary says:
    February 17, 2018, 4:09 AM at 4:09 am

    Hi, little Adam! You’re doing so well! Soon you’ll be eating more and IV-free and playing at home. I’m so proud of your big smiles and daily improvement. You inspire me!! ☺️

    Reply
  9. Sy says:
    February 17, 2018, 2:49 AM at 2:49 am

    Happy New Year! Love those little feet!

    Reply
  10. Jenn K. says:
    February 17, 2018, 1:15 AM at 1:15 am

    Happy Chinese New Year baby Adam!!! Loving the big smile. ❤️

    Reply
  11. Ellen Tweed says:
    February 16, 2018, 11:39 PM at 11:39 pm

    Adam is looking better each day! I look forward to seeing him at home soon.

    Reply

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