Adam is still recovering from his first chemo treatment but we are seeing small improvements day by day.
I woke up to this BIG SMILE this morning ?
His belly got another 2 cm smaller in circumference from yesterday’s measurement. His weight also went down by 0.7 kg. It seems his left eye is also a little more open today than it was yesterday!
The doctors have now prioritized his eating and nutrition, so it’s extremely important that he eats well and reaches his “feeding goal” based on what the nutritionist has recommended.
Adam is still eating through the feeding (NG) tube. However, yesterday he vomited twice because we think the feedings are still too large for his stomach capacity (36 ounces/day). ? So this morning we reduced his tube feeding volume to something much less (24 ounces/day). But then tonight, again he vomited ?. So right now we are still trying to figure out what volume his stomach can tolerate. The nutritionist seems very aggressive in how much she wants Adam to eat. But we’ve asked for a less aggressive goal (so as not to be counterproductive). Please pray that Adam’s eating will improve, so that he gets the nutrition he needs.
Lastly, we found out tonight that Adam may need to undergo a small surgical procedure next week in order to do a biopsy of his tumor so they can determine how aggressive the tumor is. The biopsy will tell the doctors whether his neuroblastoma is N-MYC amplified or not, which will ultimately determine the final prognosis and thus the treatment plan. If N-MYC amplified, this means he is high risk and a more aggressive treatment is required and also lengthier treatment duration. More details hopefully next week.
Please continue to pray for us and please know that even though we may not be responding to your individual comments, we are so thankful to those of you who are following this blog and fervently praying for us EVERY SINGLE DAY. We love you all.