Okay, hi, I’m back! (not that you guys were waiting around for me…) I needed to take a quick breather. First off, here’s a couple pics of our brave little boy this morning! He’s slowly starting to sit up again.
The weekends at the hospitals are the best because docs and nurses are not constantly coming into your room. (Even though it’s totally necessary). And the 3 of us get to spend more quality time together as a family. But somehow Adam’s naps always get interrupted, and for those of you who have kids, I’m sure you know what happens when you wake a sleeping baby. Yeah.. EXACTLY.
Regarding Adam’s eating…
Starting yesterday, we have been turning off the feeding pump during the day to stimulate his hunger and force him to eat by mouth. He hasn’t been eating a lot but today was a little better than yesterday. At night, the feeding pump is turned back on and he receives a small continuous feed throughout the night.
Adam has also been vomiting every night at midnight for the last 2 nights.😔 It’s the saddest thing to see an infant throwing up. And one of the times there was a little blood in his vomit. (Sorry if this is too much information.) So, the doctors gave him a medication to protect his stomach lining. We’ve also increased the frequency of his anti-nausea medication to help with the vomiting. Thankfully last night, he did NOT vomit! 🙌 Thank you, Lord. Please pray that Adam continues to eat well and does not vomit anymore.
Regarding Adam’s pain medication…
For the last 5 days, the doctors have been slowly weaning him off of his continuous pain medication. As of today, his pain medication was discontinued! This was a HUGE deal, since he’s been on pain meds continuously for over the last 2 weeks. AND we are now one tiny step closer to going home. Adam did great the last few days as we were weaning and today so far he’s doing amazing. Since he’s doing so well without the pain meds, the doctors also decided to “graduate” him from needing to be on a monitor 24/7, so he now has 4 less wires hooked up to him! Today was a BIG day. We’re excited about being able to roam the halls now.
A physical therapist came by to see Adam today, to help him strengthen and regain some muscle function that he’s lost since his diagnosis. He used to love jumping up and down, and he’s now slowly learning to stand up and hold his legs up again!
Regarding Adam’s eye…
Most of the swelling in his left eye seems to have gone down a lot, and he is able to open up his eye more now. The purple bruising seems to be going down too. This is a good sign that the tumor in the sphenoid bone behind his eyes may be shrinking. His left eye is still not tracking, but we hope to meet with the ophthalmologist sometime again this week for more information. We still don’t know the condition of his optic nerve and whether any permanent damage has been done, so there is still a lot of worry and concern about this. Please continue to pray for Adam’s eye and for this visit.
Lastly, Adam will probably need to have a biopsy of his primary tumor done, this week. We are hoping to speak to his primary care doctor tomorrow to discuss this. She wants to make sure all his cell counts are up and doing well before he undergoes anesthesia for this procedure. Please pray for this biopsy procedure to go smoothly and that the doctors would obtain the information they need in order to finalize their prognosis.
Thank you again for your continued prayers, and for allowing us to share our specific prayer burdens with you.