Okay, hi, I’m back! (not that you guys were waiting around for me…) I needed to take a quick breather. First off, here’s a couple pics of our brave little boy this morning! He’s slowly starting to sit up again.
The weekends at the hospitals are the best because docs and nurses are not constantly coming into your room. (Even though it’s totally necessary). And the 3 of us get to spend more quality time together as a family. But somehow Adam’s naps always get interrupted, and for those of you who have kids, I’m sure you know what happens when you wake a sleeping baby. Yeah.. EXACTLY.
Regarding Adam’s eating…
Starting yesterday, we have been turning off the feeding pump during the day to stimulate his hunger and force him to eat by mouth. He hasn’t been eating a lot but today was a little better than yesterday. At night, the feeding pump is turned back on and he receives a small continuous feed throughout the night.
Adam has also been vomiting every night at midnight for the last 2 nights.? It’s the saddest thing to see an infant throwing up. And one of the times there was a little blood in his vomit. (Sorry if this is too much information.) So, the doctors gave him a medication to protect his stomach lining. We’ve also increased the frequency of his anti-nausea medication to help with the vomiting. Thankfully last night, he did NOT vomit! ? Thank you, Lord. Please pray that Adam continues to eat well and does not vomit anymore.
Regarding Adam’s pain medication…
For the last 5 days, the doctors have been slowly weaning him off of his continuous pain medication. As of today, his pain medication was discontinued! This was a HUGE deal, since he’s been on pain meds continuously for over the last 2 weeks. AND we are now one tiny step closer to going home. Adam did great the last few days as we were weaning and today so far he’s doing amazing. Since he’s doing so well without the pain meds, the doctors also decided to “graduate” him from needing to be on a monitor 24/7, so he now has 4 less wires hooked up to him! Today was a BIG day. We’re excited about being able to roam the halls now.
A physical therapist came by to see Adam today, to help him strengthen and regain some muscle function that he’s lost since his diagnosis. He used to love jumping up and down, and he’s now slowly learning to stand up and hold his legs up again!
Regarding Adam’s eye…
Most of the swelling in his left eye seems to have gone down a lot, and he is able to open up his eye more now. The purple bruising seems to be going down too. This is a good sign that the tumor in the sphenoid bone behind his eyes may be shrinking. His left eye is still not tracking, but we hope to meet with the ophthalmologist sometime again this week for more information. We still don’t know the condition of his optic nerve and whether any permanent damage has been done, so there is still a lot of worry and concern about this. Please continue to pray for Adam’s eye and for this visit.
Lastly, Adam will probably need to have a biopsy of his primary tumor done, this week. We are hoping to speak to his primary care doctor tomorrow to discuss this. She wants to make sure all his cell counts are up and doing well before he undergoes anesthesia for this procedure. Please pray for this biopsy procedure to go smoothly and that the doctors would obtain the information they need in order to finalize their prognosis.
Thank you again for your continued prayers, and for allowing us to share our specific prayer burdens with you.
9 thoughts on “A restful weekend”
Just reading now in Mexico City and sending love and prayers for you 3.
Lit a candle for him today at San Francisco church in MC.
Thank you for all details. ❤️
So happy to see a post! And, so happy to see Adam smile! Thinking of the family ❤️
Tears of Joy from NC to LA…no more pain medication + 4 less tubes –
Hallelujah! What good news – thank you for the update! We have our
ladies Bible Study here keeping Adam in prayer (we’re about 100…)
Do you feel the LOVE?? Sending HuGs…BiG! J + N
Like everyone, I have this website bookmarked in my phone, and am checking it constantly. Of course that doesn’t mean you’re EVER obligated to update, but know that there’s an army of people who spend their entire day thinking about Adam and praying for him. When Adam has a good day, we have a good day ☺️
We are so happy that he didn’t throw up, and that he’s been able to eat. We’re also so excited that Adam gets to move around more! Go Adam!
Dear, heavenly Father, continue to keep Adam SO SAFE and give him the BEST CARE. Lord, also keep us open to You in all of this.
We are so happy to know that Adam has less tubes hooked up on him. We pray that he continues to eat well and that his eye will recover. So happy that he can go home soon and be loved in his familiar surroundings. That’s great a PT can help him in the hospital too! Praise the Lord for all these improvements!
Lots of love from Uncle Ben and Auntie Leana. =)
Joyce and I had asked that Adam be added to our Church prayer list and his name was read and will continue to be read on Sundays. There has been a great outpouring of concern and love for Adam and his family.
So glad to hear these updates. (And like Sarah and Adrian, I also have been checking my emails for updates like it’s my job! ?) It sound a like you all had a restful yet productive weekend. I love seeing Adam out of the bed with the PT – that must be so fun for him to move around more. Off of pain meds AND graduating from 24/7 monitoring?! Good job, Adam!
Thank you for letting us know what to pray for this week. Our love to you all! Adam, you’re incredible!
We do wait around for these updates! Not to put unwanted pressure on you or anything 😉 Many things to be thankful for and many things to pray for! I hope you could all come home soon! Standing with you all.
Thanks for coming back! I’ve only been checking my email for new posts every couple hours that’s all ? But thank you for taking the time to give us all the details, so we can pray for Adam’s day to day needs.
Our brave little Adam! It makes Auntie Sarah and Uncle Adrian so happy to see your smiles again. We are praying for you moment by moment. We love you ❤️