We were discharged from the hospital last night (Sunday) around 6:30 pm. We are home now! ☺
As mentioned previously, the doctors had been monitoring the following 3 things before we could be discharged:
- ANC (neutrophil count- immunity)
- No bacterial growth in blood culture or recurring fever
Regarding his eating…
Adam was taken off of IV fluids Sunday morning to see how well he eats throughout the day. The doctors wanted to make sure he eats and does not vomit. Adam ate 17 ounces yesterday which was an improvement from the days before, and he hasn’t vomited in the last 2 days.
Regarding his ANC…
His ANC has been slowly increasing over the last few days. On Friday, his ANC was non-existent. Yesterday when we were discharged, it was 280. He is still neutropenic but the doctors were happy to see that his immunity is on the upswing. We are continuing to give him injections until his counts are higher.
Regarding any bacterial growth…
Blood cultures were drawn Friday morning as soon as Adam was admitted into the ER, to see if there was an infection in the blood. It takes 48 hours for the final culture results to come in. By yesterday morning, the blood cultures were negative; as well as the other nasal swabs and stool samples they took to check for possible viruses. All came back negative, which is good news. He also hasn’t had a fever since Friday night when he was admitted into the ER.
Since Adam showed improvement in all 3 areas, we were discharged last night. His platelets are still very low, but the doctors don’t think he needs any transfusions since he is not showing any signs of bleeding. (There’s always a risk with any blood transfusion so the doctors try not to infuse unless absolutely necessary). We will go back to CHLA this afternoon for Adam’s scheduled blood draw appointment and dressing change.
Some other good news, he was taken off his daily blood pressure medication, yay! His BP has been normal the last few days so the doctors did not think he needed it anymore.
On another note, our sweet boy turned 9 months old a few days ago! On Friday he started crawling (good day to start 🙄) and he can sit up on his own now 💛