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Adam's Cancer Journey

Philippians 1:19 – For I know that for me this will turn out to salvation through your petition and the bountiful supply of the Spirit of Jesus Christ

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Low Grade Fever

Posted on March 16, 2018, 1:41 PM by Hannah

Adam’s eating has recently declined and he has not been eating well the last 3 days. Less than 15 ounces a day. Yesterday, Adam had a CT scan scheduled in the morning. He was required to fast since 5:00 am until the scan was complete, so he had not eaten anything all morning.  But after […]

Posted in Uncategorized7 Comments on Low Grade Fever

Monday’s Blood Draw

Posted on March 13, 2018, 1:50 PMMarch 30, 2018, 1:19 PM by Hannah

After every chemo cycle, Adam will undergo a series of blood draws every 3 days so the doctors can determine whether he needs any transfusions, depending on his blood cell counts.  The blood draws will continue until his cell counts recover from the chemo treatment. At that point, he would likely be ready to begin […]

Posted in Uncategorized4 Comments on Monday’s Blood Draw

Extended Meal Sign Up

Posted on March 11, 2018, 9:22 PM by Sarah

(Note: This post is by Sarah, Hannah’s sister) As Hannah has mentioned in an earlier post, there is a meal sign up that was set up to allow friends and family to send/bring food for them so that they can focus their time and energy on caring for Adam. The sign up has been extended […]

Posted in Uncategorized4 Comments on Extended Meal Sign Up

Home after 2nd chemo cycle

Posted on March 9, 2018, 10:22 PMMarch 30, 2018, 1:21 PM by Hannah

Since Adam’s second chemo treatment on Tuesday, he’s been doing pretty well at home. He has not spiked a fever yet (thank you Lord ?), and he still remains happy and energetic when he’s awake. Contrary to his first chemo treatment, we have not had to give him any anti-nausea medication, and he has not […]

Posted in Uncategorized9 Comments on Home after 2nd chemo cycle

2nd chemo cycle

Posted on March 7, 2018, 11:20 AMMarch 30, 2018, 1:22 PM by Hannah

Adam completed his second cycle of chemo treatment yesterday (Tuesday). This was done as an outpatient at the Infusion Center here at CHLA. We will soon come to know this place really well. It was a very long day, that started at 9:00 am and finished by 6:00 pm. His chemo treatment was followed by […]

Posted in Uncategorized3 Comments on 2nd chemo cycle

Follow up Visit

Posted on March 5, 2018, 9:21 PM by Mark

We had our follow up visit this evening. We were hoping to have a diagnosis and clear direction, but it was not to be. The biopsy sample was not sufficient for them to determine NMYC status. So we will be continuing with the intermediate chemo treatment tomorrow. We will go in at 9:00am tomorrow, and […]

Posted in Uncategorized8 Comments on Follow up Visit

Our Time at Home

Posted on March 4, 2018, 2:01 PMMarch 4, 2018, 6:53 PM by Hannah

Helllloooo, sorry that we sort of disappeared for a few days! But I know many people are probably wondering what our time at home has been like. So. It’s now been 6 days at home and so far we are surviving! Being at home with Adam has been easier and better than I anticipated it […]

Posted in Uncategorized7 Comments on Our Time at Home

Some babbling and tummy time

Posted on March 3, 2018, 12:21 PMMarch 4, 2018, 7:02 PM by Mark
Posted in Uncategorized4 Comments on Some babbling and tummy time

Adam’s left eye

Posted on March 3, 2018, 10:27 AMMarch 4, 2018, 6:48 PM by Hannah

As of this last week, Adam’s eye appeared to be dilating, responding to light, and moving from side to side. Even physically his eye looks so good and seemingly back to normal. So, we were hopeful that maybe there had been some improvement to his left eye. We had a follow up appointment with the […]

Posted in Uncategorized6 Comments on Adam’s left eye

Biopsy and Going Home!

Posted on February 27, 2018, 12:02 PMFebruary 27, 2018, 4:49 PM by Hannah

Good morning. Yesterday and today have been so hectic, thus the late post. But, we have some new updates for you. As you all know, Adam had his biopsy procedure yesterday morning at 9:30 am. The procedure was done within an hour and Adam did great. There were no complications, and the surgeon (along with […]

Posted in Uncategorized27 Comments on Biopsy and Going Home!

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