Adam’s MIBG scan went smoothly on Wednesday, and we’re expecting results by next Monday. We hope that this will show that the chemo has been working, and we’re on track. His oncologist also wanted to see whether the tumor in the bones behind his left eye is completely gone. This is the only way for them to tell. His counts have been low for over 2 weeks now and he’s taken a lot longer to recover this time around. The doctor says the chemo will have cumulative effects as therapy continues. Adam is expected to start his 5th chemo cycle next week.
We hope that over the next couple months, things will settle down a bit, and we can make a routine of sorts. With Hannah back at work we are learning to manage regular life and Adam’s care. We are now at a point where we have had a chance to reflect on the past few months. Never in a million years did we ever imagine we’d be in this situation. At times it has felt like a really bad dream that we would surely wake up from, at other times, the pain is very sharp and real. We have had many experiences we never expected, including receiving help from so many people. This process has been difficult, but it has been such a comfort to have so many people surrounding us with love, care, sympathy, and prayers. We wish we had the ability to thank each and every one of you for the support we have received from you all; our family and friends, and even from people we have never met before. From the bottom of our hearts, thank you for all the food and supplies that were brought to us in the hospital and delivered to our home, for the toys and snugly animals and homemade blankets and onesies, for the overwhelming generosity in financial giving, for the sharing of life experiences, for the emails and blog notes of encouragement, for the phone calls and text messages, for the visitations, and for the faithful daily, weekly, and continuing prayers. You have helped us through this time more than you know, and even more than we know. We have been brought to tears by your overwhelming care and generosity.
Though our updates may not be as frequent going forward, this should mean that things have returned to a certain level of normalcy, and we’re doing ok. We will be sure to keep you updated if there are any major milestones.
With much love,
Hannah, Mark, and Adam