Philippians 1:19 – For I know that for me this will turn out to salvation through your petition and the bountiful supply of the Spirit of Jesus Christ
So, many people are probably wondering what a day to day looks like for us here at CHLA. We’ve been here for 5 days now, and I feel like we’ve practically moved in. I’ve already unpacked my suitcase and put stuff into drawers. Here’s a view of our room at night. That’s the fold out […]
Last night Adam had a fever. As a chemo patient, fevers are taken very seriously. A blood culture was taken to check for a blood infection, and so far it seems clear. He was given Tylenol to reduce the fever, and put on antibiotics as a preventative measure. This morning his temperature was back down […]
So, yesterday afternoon Adam received his 3rd dose of chemo medication and he has now completed his first cycle of treatment. He had no reaction to the 3rd dose this time (thank you, Lord ?) and everything went smoothly. Thank you to all those who had been praying for this! Last night after his treatment […]
Despite the distressing news we received yesterday, we are happy that Adam seems to be more alert and playful this morning. He was talking to the nurses, rattling his toy, and as always, pulling his IV wires. He is also eating much better than the last few days, AND peeing and pooping a lot! “Yay, […]
Adam has his second chemo dose today. He once again had a similar reaction as last night where he deoxygenated and hyperventilated. However after some additional pre-medications, the transfusion was resumed and 4 hours later the second dose of chemotherapy was complete. Adam’s 3rd and final dose will be tomorrow (Saturday) afternoon. We also received […]
Adam tolerated both chemo treatments last night, and slept fairly well. He is resting today, and will have another round of chemo tonight. He continues to need blood transfusions because his liver function is limited, but he is on less IV fluids, and eating a little more. “Child life” came by and set up a […]
The chest X-ray was clear and showed no fluid in his lungs. As a result of this side effect from the 2nd chemo medication resulting in deoxygenation, the doctors decided to give him hydrocortisone (steroid) to combat the reaction. The steroid worked well and the second dose was given once again at a slower rate […]
Adam responded well to the first type of drug that was used, but began deoxygenating and hyperventilating with the administration of the 2nd type of chemo drug. It has been stopped for now, and a chest X-ray ordered to make sure his lungs are clear. We are awaiting the decision of how to proceed.
We had long discussions with the Neuroblastoma specialist today. Adam will be receiving his first dose of chemo today due to the rapid rate at which his tumor is developing. Prayer burdens: The tumor would respond to treatment and relieve his breathing, digestion, and swelling. It has not been determined if he has elevated NMYC […]
Headed to Children’s Hospital Los Angeles (CHLA) tonight to be closer to home (Pasadena). Adam was transferred via ambulance. We made it safely to LA!
