Author: Mark
Diagnostics and Going Home?
This past week has involved a lot of R&R for Adam, but also he has had to redo some of the diagnostic tests that were done the first week of his hospital stay at another hospital. Unfortunately, the tumor sample, and the imaging scans were not adequate, so he had a repeat MIBG scan (full […]
Cautiously Optimistic
I apologize if the following explanation is too technical, but it will help in understanding the glimmer of hope we received yesterday evening. Background: From the time Adam was diagnosed with neuroblastoma, the question of whether or not he was stage 4 (high risk) or 4s (intermediate risk) was an immediate question. For stage 4, […]
Monday Bone Scan
Last night Adam had a fever. As a chemo patient, fevers are taken very seriously. A blood culture was taken to check for a blood infection, and so far it seems clear. He was given Tylenol to reduce the fever, and put on antibiotics as a preventative measure. This morning his temperature was back down […]
A good night
Adam tolerated both chemo treatments last night, and slept fairly well. He is resting today, and will have another round of chemo tonight. He continues to need blood transfusions because his liver function is limited, but he is on less IV fluids, and eating a little more. “Child life” came by and set up a […]
Chemo 8:30 PM
Adam responded well to the first type of drug that was used, but began deoxygenating and hyperventilating with the administration of the 2nd type of chemo drug. It has been stopped for now, and a chest X-ray ordered to make sure his lungs are clear. We are awaiting the decision of how to proceed.
Starting chemo today
We had long discussions with the Neuroblastoma specialist today. Adam will be receiving his first dose of chemo today due to the rapid rate at which his tumor is developing. Prayer burdens: The tumor would respond to treatment and relieve his breathing, digestion, and swelling. It has not been determined if he has elevated NMYC […]
2/6/18
Today Adam was administered an isotope which will allow a body scan to show all the areas of his body to which neuroblastoma cells have spread. The scan will take place tomorrow 2/7/18 at 8:30 AM. Once the scan is complete, we will transfer to CHLA to begin treatment. Current prayer requests: Adam would sleep […]